The Institute of Medicine (IOM) assembled a committee to develop guiding principles and a practical framework for the responsible sharing of clinical trial data. In its report, Sharing Clinical Trial Data: Maximizing Benefits, Minimizing Risk, the committee concludes that sharing data is in the public interest, but a multi-stakeholder effort is needed to develop a culture, infrastructure, and policies that will foster responsible sharing—now and in the future.
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DDI is an international effort to create a standard to describe statistical and social science data. Documenting data with DDI facilitates interpretation and understanding -- both by humans and computers. The international DDI standard describes data that result from observational methods in the social, behavioral, economic, and health sciences.